General contact
Email is the best way to reach us. We are a small organization and respond to every message, though response time may be a few days.
Email: contact@polandfoundation.org
Mailing address:
Poland Foundation, Inc.
Madison, Mississippi
What to contact us about
Site feedback
Something is wrong, missing, or could be better. Patient and family experience is the most valuable input we can receive. No detail is too small.
Provider nominations
Know a surgeon or specialist with Poland anomaly experience who is not in our directory? Send us their name, specialty, institution, and location.
Partnership inquiries
Hospitals, rare disease organizations, patient advocacy groups, and researchers interested in working with Poland Foundation.
Share your story
Have a story about living with Poland anomaly — yours, your child's, or someone you love? We want to hear it. Patient stories are the heart of what this community needs, and we are building a place for them. Email us at contact@polandfoundation.org with the subject line My Story.
Media requests
Journalists, documentary makers, and podcast producers covering Poland anomaly, rare disease, or pediatric health.
Conference interest
Families who want to attend, clinicians who want to present, or sponsors interested in supporting the annual conference.
Travel assistance
Families who need help covering travel costs to see a specialist. Our program is being established — reach out now if your need is urgent.
What we cannot help with
Poland Foundation is an educational and support organization, not a medical provider. We cannot provide medical advice, recommend a specific treatment course, or evaluate an individual's symptoms. For medical questions, please consult a physician. Our specialist directory can help you find a provider with Poland anomaly experience.
We also cannot provide legal advice, assist with individual insurance claims, or intervene in disputes with insurers. Our insurance guidance page explains your rights and the appeal process — but working through that process is something you will need to do directly with your insurer and, if needed, an attorney.
If you found something wrong on this site, please tell us. We researched every page carefully, but patient experience catches things research misses. The building together page explains specifically what we are looking for and how to submit feedback.